There were three
(main) reasons I started blogging about my journey with Endometriosis (and now PCOS):
1 - So that I
would be able to write everything down in one place and refer my friends and
family to the blog...hopefully limiting the number of times I would have to
explain the things that, at times, can be overwhelming and complicated (not to
mention forgetting different pieces of the puzzle at different times).
2 - So that I
could hopefully help others on the same journey. I learned a lot about
myself and my body when I couldn't find a good doctor, and now that I have a
knowledgeable doctor, I have learned even more.
3 - The
biggest reason I wanted to share my journey is so that our journey to a miracle
can be shared with our children some day. Our babies will be able to see
how much they were prayed for and how hard we worked to have them.
With that being
said, some of the struggles I've had with this battle are extremely personal
and possibly a little uncomfortable for some people to talk about - like guys
and there avoidance of the topic - periods...but that's part of this journey,
and if I'm going to help others, I'm going to be honest. I’m probably a little more open about it than
some might be because I have dealt with it for so long and I’m so used to it.
This week has
been one of my more frustrating weeks on this journey. I haven't been
very happy with the "professionalism" of my doctor and his office
since after my surgery. I had some pretty serious back pain and other
complications after the surgery that he simply brushed off as "part of
endometriosis."
I had my follow up
appointment on Friday, Sept. 14, an entire month. I have yet to get my shot in the mail, or
even get the call from the place that will send it to me. I called the doctors office last Monday,
October 1, and talked with the receptionist.
She couldn’t find my folder to see if the shot had been ordered, but
felt like the insurance/billing person had it and was taking care of
things. Seeing that it had been almost a
month, she put a note on that person’s desk.
On Wednesday
morning, I still hadn’t heard anything, so I called the billing person and left
a message for her to call me. When she
called me back that afternoon, two things were obvious. She never got the “note” that “was left” for
her on Monday, and she had forgotten to order my shot over the past month.
I’ve talked to her
this week as well and she said that she had talked to the place that will send
the shot. They have my information and
were supposed to call me by Wednesday…it’s Saturday, and still no call.
At this point, I’m
not sure when I’ll get the shot, but I’m guessing I’ll have to endure another
period, and that is the LAST thing that is supposed to happen.
Needless to say,
I’m considering (now more than ever) looking into some other doctors in the
area to see what other options I have.
The past week has
also been extremely frustrating because I am enduring my monthly bladder
infection-ish. I say “ish” because I
don’t actually have a bladder infection.
I would test negative, and the antibiotics to treat it would do
nothing. My entire body just FEELS like
I have one because I have endometriosis on my bladder.
This is something I
have also been living with for almost two years now. I had one so bad last summer that I nearly
passed out at the Rangers game. I ended
up with a pretty bad heat rash and spent the only 3 innings we stayed in the
bathroom.
When this happen,
it’s honestly the most miserable I feel throughout all of the things this
journey has had me endure. There isn’t
much that brings me relief, and on at
least 3 occasions in the last year, I’ve ended up throwing up before the pain
goes away.
I end up drinking a
WHOLE lot of cranberry juice, a little pill that makes my urine orange, and
lots of advil…and I spend a lot of time praying that God will just let me feel
better.
Like I mentioned
earlier, I don’t have a lot of confidence in my doctor at this time, and seeing
that he is only in his office on Monday and Wednesday all day and Friday for
half a day, I don’t really have a doctor that is accessible to call when things
like this come up. I’d like to find a
doctor that gets to know me and listens to my story, then helps me while we go
through this journey together. I would
expect my doctor to be available to call when things come up related to the
very issue he is helping me with…but I don’t feel like I have that right now.
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